May 12, 2023
Day + 22
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Success at today’s clinic. My labs are ok, no need for any changes in my meds. They’re still monitoring my heart and neutrophil count. My next appointment is on Monday which means a whole weekend without medical appointments. Eva helped me walk around earlier without my walker — . . .
May 11, 2023
Day + 21
Still making some progress, and no clinic or labs until tomorrow. Eva and I took a walk yesterday afternoon around the main Stanford campus. I remember years ago Tim showing me around his alma mater. He was very definite in choosing Stanford for medical school after getting a feel for December . . .
May 10, 2023
Day + 19
Amazingly, I have today and tomorrow free from clinic appointments. Although there are still markers they’re watching closely, several are slowly moving in the right direction. Plenty of meds to take, but no neupogen shots needed right now. They also cautioned me not to worry that my weight is actually decreasing a little. . . .
May 8, 2023
Day + 18
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Finally, an entire day with no medical or clinic appointments. It’s such a relief to be able to take it easy a bit.
Of course, there are plenty of pills for me to organize and take every morning and evening just to keep me out of mischief. I really appreciate how my Dad organized all my mom’s pills every day. Her pills changed . . .
May 6, 2023
Day + 16
I’m comfortably settled into my hotel. Eva is taking excellent care of me. I have daily appointments at the clinic, sometimes taking only an hour or so, other times infusions can last 5-6 hours. Several of my lab results are getting there however my neutrophil counts are still very low along with a few other markers. But, they’re keeping . . .
May 4, 2023
Day + 14
Today is a memorable yet mixed day for me. Discharged from the hospital on the fourth anniversary of Tim’s death. Seems fitting.
The Stanford staff and especially the nurses have been so generous with their kindness, expertise, patience and good humor. Thanks for everything.
And, of . . .
May 3, 2023
Day + 13
Things are looking up. It turns out that I did have level 2 CRS (Cytokine Release Syndrome) last week which explains the high fever and ongoing heart monitoring.
Anticipate discharge tomorrow to the hotel for a few weeks if all my labs hold up. Will still have to use a walker and my . . .
